I am a mother of two children, and my oldest child was diagnosed with autism ten years ago this year. Like many parents with children who have autism, my family is African-American, and thus we have a culturally unique experience with disability. It was my family’s experience at the intersection of disability and race that led me to my current research as a Ph.D. student in the anthropology department at UCLA. My work centers on African-American parents of children with autism and the health care and autism service disparities that affect this population and that have a far-reaching impact in the classroom and beyond.
Disparities in autism care begin with the diagnostic process within the medical system. Several recent academic public health studies have shown that African-American children are under-diagnosed compared to White American children. “White children are about 19 percent more likely than Black children…to be diagnosed with autism,” according to the Spectrum News, and Black children are also diagnosed later. “As a result, African American children may require longer and more intensive intervention,” which winds up costing far more.
Black children are misdiagnosed more often than White children. ADHD, adjustment disorder, and conduct disorder are among the most common misdiagnoses. This may help explain the seeming contradiction between the fact that African American kids are under-diagnosed for autism but are over-identified for special education services at LAUSD. Misdiagnosis can result in school placement and services that are inappropriate for children with autism.Read More